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Advisor(s)
Abstract(s)
O aumento da longevidade humana conduz à ocorrência de limitações de índole biológica, psicológica e social. Ainda que a velhice não seja sinónimo de doença, o crescimento da população idosa contribui para o aumento do número de pessoas com doenças crónicas e incapacitantes, como é o caso da demência, que podem comprometer a capacidade funcional dos indivíduos e aumentar o risco de dependência. A demência, e as alterações funcionais que a ela se encontram associadas, conduzem inevitavelmente à perda da autonomia do doente, tornando-se imprescindível o recurso a um cuidador com vista a assegurar as necessidades humanas básicas do doente. Todavia, cuidar pode acarretar repercussões podendo despoletar a sobrecarga do cuidador. Neste sentido, são objetivos do presente estudo conhecer a sobrecarga dos cuidadores informais de doentes com demência, bem como identificar a sua resiliência e as principais estratégias de coping adotadas por estes para fazer face à doença. Para isso, realizou-se um estudo transversal, quantitativo, descritivo e correlacional. A amostra foi constituída por 75 cuidadores. Foi utilizado um Questionário Sociodemográfico e do contexto do cuidar construído pela investigadora, a versão reduzida do Questionário de Avaliação da Sobrecarga do Cuidador Informal, a Escala de Resiliência e o Brief-Cope para medir as estratégias de coping mais frequentemente utilizadas. Quanto aos principais resultados obtidos, verificou-se: (i) uma sobrecarga, em média, grave (M=51,71; DP=18,00); (ii) uma resiliência moderada (M=125,2; DP=25,8) e (iii) uma tendência para o uso de mais do que uma estratégia em simultâneo, sobretudo Coping Ativo (M=3,6; DP=1,6), Aceitação (M=4,1; DP=1,4), Reinterpretação Positiva (M=3,6; DP=1,7) e Humor (M=3,0; DP=1,8).
The increase in human longevity caused by the occurrence of biological, psychological and social threats. Although old age is not synonymous of disease, the growth of the elderly population contributes to an increase in the number of people with chronic and disabling diseases, such as dementia, which can compromise the functional capacity of users and increase the risk of incidence. Dementia, and the changes that are affected, inevitably cause the patient to lose capacity, become essential or turn to a caregiver to protect them as they are harmed. However, treatment may have additional repercussions that may trigger an overload on the caregiver. In this sense, the objectives of the present study are to know the burden of informal caregivers of patients with dementia, as well as to identify their resilience and the main coping strategies adopted by them to face the disease. For this, a cross-sectional, quantitative, descriptive and correlational study was defined. The sample consisted of 75 caregivers. A Sociodemographic Questionnaire constructed by the researcher, the reduced version of the Informal Caregiver Burden Assessment Questionnaire, the Resilience Scale and a Brief-Cope, to measure the most frequently used coping strategies, were used. Regarding the main results obtained: (i) the sample exhibited, in average, a severe burden (M = 51.71; SD = 18.00); (ii) a moderate level of resilience (M = 125.2; SD = 25.8) and (iii) tendency to use more than one strategy at the same time, especially Active Coping (M = 3.6; SD = 1.6), Acceptance (M = 4.1; SD = 1.4), Positive Reinterpretation (M = 3.6; SD = 1.7) and Humor (M = 3.0; SD = 1.8).
The increase in human longevity caused by the occurrence of biological, psychological and social threats. Although old age is not synonymous of disease, the growth of the elderly population contributes to an increase in the number of people with chronic and disabling diseases, such as dementia, which can compromise the functional capacity of users and increase the risk of incidence. Dementia, and the changes that are affected, inevitably cause the patient to lose capacity, become essential or turn to a caregiver to protect them as they are harmed. However, treatment may have additional repercussions that may trigger an overload on the caregiver. In this sense, the objectives of the present study are to know the burden of informal caregivers of patients with dementia, as well as to identify their resilience and the main coping strategies adopted by them to face the disease. For this, a cross-sectional, quantitative, descriptive and correlational study was defined. The sample consisted of 75 caregivers. A Sociodemographic Questionnaire constructed by the researcher, the reduced version of the Informal Caregiver Burden Assessment Questionnaire, the Resilience Scale and a Brief-Cope, to measure the most frequently used coping strategies, were used. Regarding the main results obtained: (i) the sample exhibited, in average, a severe burden (M = 51.71; SD = 18.00); (ii) a moderate level of resilience (M = 125.2; SD = 25.8) and (iii) tendency to use more than one strategy at the same time, especially Active Coping (M = 3.6; SD = 1.6), Acceptance (M = 4.1; SD = 1.4), Positive Reinterpretation (M = 3.6; SD = 1.7) and Humor (M = 3.0; SD = 1.8).
Description
Keywords
Cuidador informal Demência Sobrecarga Resiliência Estratégias de coping Informal caregiver Dementia Burden Resilience Coping strategies
