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Fibromialgia: um estudo qualitativo sobre experiências de vidas pautadas pela dor
| Name: | Description: | Size: | Format: | |
|---|---|---|---|---|
| 38079 | 2.96 MB | Adobe PDF |
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Abstract(s)
Para muitos definida por dor, para outros tantos definida por incapacitante. A Fibromialgia é caracterizada como a doença crónica de dor generalizada com maior prevalência. Define-se por ser uma doença de dor crónica generalizada e persistente, acompanhada por fadiga, alterações no sono, queixas cognitivas e sintomatologia ansiosa e depressiva. Apresenta uma grande complexidade diagnóstica e de tratamento e ainda se reveste de algum preconceito e possível estigmatização no domínio clínico e médico.
Desta forma, a presente investigação pretendeu dar voz às experiências de vida dos portadores de Fibromialgia, bem como compreender a forma como estes percebem e vivem a sua realidade em função da dor, a nível desenvolvimental e de relação com a doença. Para tal foi sustentada numa metodologia qualitativa com recurso a entrevistas semiestruturadas junto de portadores de Fibromialgia, posteriormente analisadas recorrendo à Teoria Sustentada nos Dados.
Os resultados espelhados nos discursos das participantes confirmam a existência de experiências pessoais centralmente (des)organizadas pela dor, sendo que dão nota de um processo sinuoso até à chegada ao diagnóstico, uma vez que nos casos recolhidos foi devolvido pelos clínicos com reduzida informação quanto às características da doença e quanto aos processos disponíveis para adaptação às condições que a Fibromialgia impõe. As estratégias propostas para lidar com a dor são predominantemente farmacológicas e as alternativas de procura de recursos para enfrentamento da doença são de iniciativa das participantes. Ressalta ainda a inexistência de um espaço para o acompanhamento psicológico individualmente ou integrado numa equipa multidisciplinar, o que remete para a necessidade de valorizar as competências dos profissionais da Psicologia cumprindo as linhas de orientação para um acompanhamento integrado dos pacientes com Fibromialgia.
For many defined by pain, for many others defined as disabling, fibromyalgia is characterized as the chronic disease of generalized pain with the highest prevalence. It is defined as a disease of generalized and persistent chronic pain, accompanied by fatigue, changes in sleep, cognitive complaints and anxious and depressive symptomatology. It presents a great diagnostic and treatment complexity and still has some prejudice and possible stigmatization in the clinical and medical domain . Thus, the present research aimed to give voice to the life experiences of Fibromyalgia patients, as well as to understand how they perceive and live their reality in function of pain, in the various areas of life and in the relationship with the disease. To this end, it was supported by a qualitative methodology using semi-structured interviews with Fibromyalgia patients, later analyzed using the Grounded Theory. The results reflected in the discourses of the participants confirm the existence of personal experiences centrally (dis)organized by pain, give note of a meandering process until the arrival of the diagnosis, which in the cases collected was returned by the clinicians with little information about the characteristics of the disease, and about the processes available for adaptation to the conditions that Fibromyalgia imposed. The strategies proposed to deal with pain are predominantly pharmacological, and the alternatives for seeking resources to cope with the disease are the initiative of the participants. It also highlights the lack of a space for psychological monitoring individually or integrated in a multidisciplinary team, which refers to the need to value the skills of psychology professionals fulfilling the guidelines for an integrated monitoring of patients with fibromyalgia.
For many defined by pain, for many others defined as disabling, fibromyalgia is characterized as the chronic disease of generalized pain with the highest prevalence. It is defined as a disease of generalized and persistent chronic pain, accompanied by fatigue, changes in sleep, cognitive complaints and anxious and depressive symptomatology. It presents a great diagnostic and treatment complexity and still has some prejudice and possible stigmatization in the clinical and medical domain . Thus, the present research aimed to give voice to the life experiences of Fibromyalgia patients, as well as to understand how they perceive and live their reality in function of pain, in the various areas of life and in the relationship with the disease. To this end, it was supported by a qualitative methodology using semi-structured interviews with Fibromyalgia patients, later analyzed using the Grounded Theory. The results reflected in the discourses of the participants confirm the existence of personal experiences centrally (dis)organized by pain, give note of a meandering process until the arrival of the diagnosis, which in the cases collected was returned by the clinicians with little information about the characteristics of the disease, and about the processes available for adaptation to the conditions that Fibromyalgia imposed. The strategies proposed to deal with pain are predominantly pharmacological, and the alternatives for seeking resources to cope with the disease are the initiative of the participants. It also highlights the lack of a space for psychological monitoring individually or integrated in a multidisciplinary team, which refers to the need to value the skills of psychology professionals fulfilling the guidelines for an integrated monitoring of patients with fibromyalgia.
Description
Keywords
Fibromialgia Dor Teoria sustentada nos dados Fibromyalgia Pain Grounded theory