Loading...
Publication
A vida para lá do cancro: o que sentem os pais
| Name: | Description: | Size: | Format: | |
|---|---|---|---|---|
| PG_31012 | 398.33 KB | Adobe PDF |
Authors
Advisor(s)
Abstract(s)
A presente monografia aborda o tema “A vida para lá do cancro: o que sentem os pais”,
e tem como objetivo explicar as alterações que ocorrem na vida dos pais destas crianças
durante a sua hospitalização, o afastamento da família, os sentimentos vivenciados, o
apoio dos familiares, amigos e pais de outras crianças na mesma situação, a não
progressão da carreira e o apoio dos profissionais de saúde, principalmente os
enfermeiros.
Desenvolveu-se um estudo do tipo exploratório- descritivo, inserido numa abordagem
qualitativa, usando uma amostra probabilística de conveniência constituída por mães. O
método de colheita de dados utilizado foi a entrevista semi-estruturada a mães alojadas
na Fundação Infantil Ronald Mcdonald. Para o tratamento dos dados recolhidos foi
utilizada a gravação e posterior transcrição das entrevistas e depois apresentadas por
quadros.
Conclui-se que as principais vivências dos pais de crianças internadas são: revolta e
tristeza e em menor escala o sentimento de culpa.
A hospitalização da criança leva a uma desestruturação familiar, as crianças e as mães
devido aos longos períodos de internamento ficam muito tempo longe de casa. As mães
referem que devido ao acompanhamento diário na hospitalização do seu filho acabam por
deixar a sua carreira profissional, desistindo dos seus sonhos na progressão da carreira,
muitas vezes sendo obrigadas a despedirem-se ou sendo despedidas pela entidade
patronal devido à sua constante ausência. As mães referem que encontram apoio na
família, nos pais das crianças com doença oncológica e expressam também o apoio que
encontram na religião e na fé.
Constatou-se que os profissionais de saúde têm um papel muito importante para estas
famílias principalmente o papel do Enfermeiro perante as vivências dos pais de crianças
com doença oncológica. Foi possível através deste estudo verificar que todas as inquiridas
valorizam muito o papel do enfermeiro durante o processo de hospitalização da criança,
através de atitudes positivas que ajudam os pais a ultrapassar o afastamento de casa e a
hospitalização da criança. Todas as mães referem que sentiram por parte dos enfermeiros
uma vontade de os envolver sempre na prestação de cuidados aos seus filhos.
This monograph deals with the theme "Life beyond cancer: what parents feel" and aims to explain the changes that occur in the lives of the parents of these children during their hospitalization, separation from the family, feelings experienced, the support of family members, friends and parents of other children in the same situation, non-career progression and the support of health professionals, especially nurses. An exploratory-descriptive study was developed, inserted in a qualitative approach, using a probabilistic sample of convenience constituted by mothers. The method of haverst collection used was the semi-structured interview with mothers housed in the Ronald Mcdonald Children's Foundation. For the treatment of the collected data the recording and later transcription of the interviews was used and later presented by tables. It is concluded that the main experiences of the parents of hospitalized children are: revolt and sadness and to a lesser extent the feeling of guilt. The hospitalization of the child leads to a family disruption, the children and the mothers due to the long periods of internment are a long time away from home. The mothers report that due to the daily monitoring of their child's hospitalization they end up leaving their professional career, giving up their dreams of career progression, often being forced to say goodbye or dismissed by the employer because of their absence. Mothers report that they find support in the family, in the parents of children with cancer, and also express the support they find in religion and faith. It was found that health professionals play a very important role for these families, especially the role of the nurse in the experiences of parents of children with cancer. It was possible through this study to verify that all respondents highly value the role of the nurse during the process of hospitalization of the child, through positive attitudes that help parents to overcome their home leave and hospitalization of the child. All mothers report that nurses felt a desire to involve them in providing care for their children.
This monograph deals with the theme "Life beyond cancer: what parents feel" and aims to explain the changes that occur in the lives of the parents of these children during their hospitalization, separation from the family, feelings experienced, the support of family members, friends and parents of other children in the same situation, non-career progression and the support of health professionals, especially nurses. An exploratory-descriptive study was developed, inserted in a qualitative approach, using a probabilistic sample of convenience constituted by mothers. The method of haverst collection used was the semi-structured interview with mothers housed in the Ronald Mcdonald Children's Foundation. For the treatment of the collected data the recording and later transcription of the interviews was used and later presented by tables. It is concluded that the main experiences of the parents of hospitalized children are: revolt and sadness and to a lesser extent the feeling of guilt. The hospitalization of the child leads to a family disruption, the children and the mothers due to the long periods of internment are a long time away from home. The mothers report that due to the daily monitoring of their child's hospitalization they end up leaving their professional career, giving up their dreams of career progression, often being forced to say goodbye or dismissed by the employer because of their absence. Mothers report that they find support in the family, in the parents of children with cancer, and also express the support they find in religion and faith. It was found that health professionals play a very important role for these families, especially the role of the nurse in the experiences of parents of children with cancer. It was possible through this study to verify that all respondents highly value the role of the nurse during the process of hospitalization of the child, through positive attitudes that help parents to overcome their home leave and hospitalization of the child. All mothers report that nurses felt a desire to involve them in providing care for their children.
Description
Projeto de Graduação apresentado à Universidade Fernando Pessoa como parte dos requisitos para obtenção do grau de Licenciada em Enfermagem
Keywords
Cancro Crianças e pais Cancer Childrens and parents