Publication
O conflito interno vivido pela família a partir da notícia da deficiência
| Name: | Description: | Size: | Format: | |
|---|---|---|---|---|
| 973.17 KB | Adobe PDF |
Advisor(s)
Abstract(s)
O presente estudo teve por finalidade aprofundar a compreensão do conflito emocional vivido pelo pai, mãe ou representantes a partir da notícia da Síndrome de Down de um filho. Todos os pais e mães vivem um processo de elaboração e adaptação com a chegada de um filho. Diante da notícia da deficiência, acontece uma ruptura abrupta nesse processo levando a um conflito emocional. Na reorganização, interna e externa, para conviver com a nova realidade e seus desafios, a família precisará de apoio. O objetivo geral foi analisar e aprofundar a compreensão desse conflito interno. A pergunta da partida foi: Como pode impactar emocionalmente a notícia da deficiência de um filho em seus familiares? Os objetivos específicos investigaram como a notícia da deficiência afeta a vida familiar e o impacto da deficiência na construção dos vínculos primários. O método utilizado foi qualitativo, com recurso à técnica da entrevista semiestruturada e em profundidade e o instrumento utilizado para a recolha dos dados foi um guião de entrevista concebido especificamente para a presente investigação. Responderam à entrevista 7 pessoas, 6 mães e um pai, de crianças com Síndrome de Down de até 12 anos, residentes no Brasil. O tratamento dos dados utilizados foi a análise de conteúdo e a interpretação e discussão dos resultados realizada com base nas teorias pesquisadas sobre o fenômeno em estudo. Os resultados apontaram que a forma como a notícia é dada interfere no conflito vivido pelos pais e consequentemente na construção da vinculação primária. O estudo constatou ainda que os profissionais de saúde que transmitem a notícia não têm o conhecimento aprofundado da complexidade da mesma e transmitem a informação enfatizando uma conotação negativa e/ou emocionalmente distante. Costumam adotar uma postura apoiada num modelo ultrapassado para deficiência, o Modelo Biomédico, impregnado de preconceitos, nomeado de capacitismo. Verificou-se também que a gestão construtiva do conflito contribui para uma nova elaboração da notícia e para uma melhor adaptação à nova realidade e que o apoio à família favorece a construção da vinculação primária.
The current study aims at deepening the understanding of the emotional conflicts experienced by parents or other family members upon the discovery that their children have Down syndrome. It is common for parents to go through an adaptation process before the arrival of a new child. When it comes to a child with Down syndrome, this process is abruptly interrupted, leading to emotional conflicts. Throughout internal and external restructuring, meant to deal with the challenges of the new reality, the family is bound to need support. The main goal here is analyzing and deepening the understanding of this internal conflict. The triggering question was: How can the discovery of a child’s Down syndrome impact their family on the emotional level? The specific aims were investigating how the discovery of the disability affects family life and the impact of it on the creation of primary bonds. Qualitative methodology has been used, by means of a technique called semi structured and in-depth interview; the research tool used for the collection of data was the interview script, conceived specifically for the current investigation. Seven people answered the interview, six mothers and one father to children with Down syndrome who were no older than twelve, all of them dwelling in Brazil. To examine data, the author of this study used content analysis, result interpretation and discussion, all of them based on the theories concerning the target phenomenon. Results have shown that the way by which this information is shared with parents interferes with the conflicts experienced by them, and consequently, with the creation of primary bonds. This study has also found that the healthcare providers who bring the news lack a deep understanding of its complexity and do it by emphasizing its negative connotation and/or in an emotionally distant fashion. They tend to base their attitude towards it on an outdated model for the disability, the Biomedical Model, which is fraught with prejudice, also called ableism. It has also been observed that a constructive management of the conflict enables a meaningful reshaping of the news and a better adaptation to the new reality. One can also claim that the support given to the family favors the creation of primary bonds.
The current study aims at deepening the understanding of the emotional conflicts experienced by parents or other family members upon the discovery that their children have Down syndrome. It is common for parents to go through an adaptation process before the arrival of a new child. When it comes to a child with Down syndrome, this process is abruptly interrupted, leading to emotional conflicts. Throughout internal and external restructuring, meant to deal with the challenges of the new reality, the family is bound to need support. The main goal here is analyzing and deepening the understanding of this internal conflict. The triggering question was: How can the discovery of a child’s Down syndrome impact their family on the emotional level? The specific aims were investigating how the discovery of the disability affects family life and the impact of it on the creation of primary bonds. Qualitative methodology has been used, by means of a technique called semi structured and in-depth interview; the research tool used for the collection of data was the interview script, conceived specifically for the current investigation. Seven people answered the interview, six mothers and one father to children with Down syndrome who were no older than twelve, all of them dwelling in Brazil. To examine data, the author of this study used content analysis, result interpretation and discussion, all of them based on the theories concerning the target phenomenon. Results have shown that the way by which this information is shared with parents interferes with the conflicts experienced by them, and consequently, with the creation of primary bonds. This study has also found that the healthcare providers who bring the news lack a deep understanding of its complexity and do it by emphasizing its negative connotation and/or in an emotionally distant fashion. They tend to base their attitude towards it on an outdated model for the disability, the Biomedical Model, which is fraught with prejudice, also called ableism. It has also been observed that a constructive management of the conflict enables a meaningful reshaping of the news and a better adaptation to the new reality. One can also claim that the support given to the family favors the creation of primary bonds.
Description
Keywords
Família Deficiência Conflito Síndrome de Down Family Disability Conflict Down syndrome