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Publication
Síndrome de Angelman e intervenção precoce: perceção das famílias
| Name: | Description: | Size: | Format: | |
|---|---|---|---|---|
| 25672 | 877.28 KB | Adobe PDF |
Advisor(s)
Abstract(s)
O objetivo geral deste estudo é conhecer a perceção das famílias de crianças portadoras de Síndrome de Angelman relativamente ao conceito de Intervenção Precoce, de trabalho de equipa, de trabalho com as famílias, de articulação entre os profissionais e serviços e de envolvimento nas atividades de vida diária/rotinas, assim como a importância que atribuem às mesmas.
Para a concretização desta investigação, construiu-se um questionário dirigido a familiares de crianças com SA. O instrumento foi distribuído na instituição “Raríssimas” durante o mês de agosto de 2015, tendo-se obtido uma amostra e dele obteve-se uma amostra de 10 respondentes. Os dados recolhidos foram analisados com recurso à estatística descritiva, utilizando-se o programa Statistical Package for the Social Sciences (SPSS)-versão 21.
De acordo com os resultados obtidos, concluiu-se que os respondentes atribuem um elevado grau de importância à intervenção precoce, bem como ao trabalho em equipa, ao trabalho com as famílias, à articulação entre os profissionais e serviços e ao envolvimento das atividades de vida diária/rotinas. No entanto, surgiram dúvidas quanto à perceção dos indivíduos relativamente a estes serviços.
The aim of this study is to know the perception of the families of children with Angelman Syndrome relation to the concept of early intervention, teamwork, work with families, the coordination between professionals and services and the involvement of life activities daily / routines, as well as the importance attached to them. To answer these objectives, was built a questionnaire for the families of children with AS. The questionnaire was distributed at the institution "Raríssimas" and it obtained a sample of 10 respondents. Data from the questionnaires were analyzed using the Statistical Package for Social Sciences (SPSS). According to the results, it was concluded that the respondents place a high degree of emphasis on early intervention, as well as teamwork, work with families, to the relationship between professionals and services and the involvement of life activities daily / routine. However, questions arose as to the perception of individuals regarding to these services.
The aim of this study is to know the perception of the families of children with Angelman Syndrome relation to the concept of early intervention, teamwork, work with families, the coordination between professionals and services and the involvement of life activities daily / routines, as well as the importance attached to them. To answer these objectives, was built a questionnaire for the families of children with AS. The questionnaire was distributed at the institution "Raríssimas" and it obtained a sample of 10 respondents. Data from the questionnaires were analyzed using the Statistical Package for Social Sciences (SPSS). According to the results, it was concluded that the respondents place a high degree of emphasis on early intervention, as well as teamwork, work with families, to the relationship between professionals and services and the involvement of life activities daily / routine. However, questions arose as to the perception of individuals regarding to these services.
Description
Projeto de Graduação apresentado à Universidade Fernando Pessoa como parte dos requisitos para obtenção do grau de Licenciada em Terapêutica da Fala
Keywords
Síndrome de Angelman Intervenção precoce Perceção dos pais Angelman syndrome Early intervention Perception of parents