Risk perception in subjects at-risk for Familial Amyloidotic Polyneuropathy: Percepción del riesgo en sujetos con riesgo de Polineuropatía Amiloide Familiar

Leite, Ângela; Dinis, Maria Alzira Pimenta; Sequeiros, Jorge; Paúl, Constança

Publication

Risk perception in subjects at-risk for Familial Amyloidotic Polyneuropathy: Percepción del riesgo en sujetos con riesgo de Polineuropatía Amiloide Familiar

2017Journal article

dc.contributor.author	Leite, Ângela
dc.contributor.author	Dinis, Maria Alzira Pimenta
dc.contributor.author	Sequeiros, Jorge
dc.contributor.author	Paúl, Constança
dc.date.accessioned	2019-09-16T08:42:24Z
dc.date.available	2019-09-16T08:42:24Z
dc.date.issued	2017
dc.description	http://sherpa.ac.uk/romeo/issn/2011-2777/	pt_PT
dc.description.abstract	The aims of this study are to know if subjects at-risk were aware of their 50% risk for Familial Amyloidotic Polyneuropathy (FAP); to know the value of the subjective risk; to understand the association between sociodemographic characteristics and risk perception, and between the risk status and the subjective perception of risk. 174 subjects 50% atrisk for FAP were tested. 52.9% subjects at-risk were aware of their 50% risk condition. The mean value of the subjective risk was higher and closer to 50% when the subjects were aware of their 50% risk condition. Education was associated to a higher awareness of being at 50% risk. It seems that information on previous knowledge before performing the genetic counselling increases the subjective risk.	pt_PT
dc.description.abstract	Los objetivos de este estudio son saber si los sujetos en riesgo eran conscientes de su riesgo del 50% para la polineuropatía amiloide familiar (PAF); conocer el valor del riesgo subjetivo; y comprender la asociación entre las características sociodemográficas y la percepción del riesgo y entre el riesgo real y la percepción subjetiva del riesgo. Se examinaron 174 sujetos con riesgo de PAF del 50%. 52,9% de los sujetos en riesgo eran conscientes de su condición de riesgo del 50%. El valor medio del riesgo subjetivo fue mayor y más cercano al 50% cuando los sujetos eran conscientes de su condición de riesgo del 50%. La educación se asoció a una mayor conciencia de estar al 50% de riesgo. Parece que la información sobre los conocimientos previos antes de realizar el asesoramiento genético aumenta el riesgo subjetivo.	pt_PT
dc.description.version	info:eu-repo/semantics/publishedVersion	pt_PT
dc.identifier.citation	APA: Leite, Â., Dinis, M. A. P., Sequeiros, J., & Paúl, C. (2017). Risk perception in subjects at-risk for Familial Amyloidotic Polyneuropathy. [Percepción del riesgo en sujetos con riesgo de Polineuropatía Amiloide Familiar]. Universitas Psychologica, 16(3), 1-9. doi:10.11144/Javeriana.upsy16-3.rpsf	pt_PT
dc.identifier.doi	10.11144/Javeriana.upsy16-3.rpsf	pt_PT
dc.identifier.issn	2011-2777
dc.identifier.uri	http://hdl.handle.net/10284/7904
dc.language.iso	eng	pt_PT
dc.peerreviewed	yes	pt_PT
dc.publisher	Pontificia Universidad Javeriana	pt_PT
dc.relation.publisherversion	http://revistas.javeriana.edu.co/index.php/revPsycho/article/view/13860	pt_PT
dc.rights.uri	http://creativecommons.org/licenses/by/4.0/	pt_PT
dc.subject	Risk perception	pt_PT
dc.subject	Psychological risk	pt_PT
dc.subject	Subjective risk	pt_PT
dc.subject	Objective risk	pt_PT
dc.subject	Familial amyloidotic polyneuropathy (FAP)	pt_PT
dc.title	Risk perception in subjects at-risk for Familial Amyloidotic Polyneuropathy: Percepción del riesgo en sujetos con riesgo de Polineuropatía Amiloide Familiar	pt_PT
dc.type	journal article
dspace.entity.type	Publication
oaire.citation.endPage	9	pt_PT
oaire.citation.issue	3	pt_PT
oaire.citation.startPage	1	pt_PT
oaire.citation.title	Universitas Psychologica	pt_PT
oaire.citation.volume	16	pt_PT
person.familyName	Dinis
person.givenName	Maria Alzira Pimenta
person.identifier	493603
person.identifier.ciencia-id	4710-147D-FDAF
person.identifier.orcid	0000-0002-2198-6740
person.identifier.rid	F-3309-2011
person.identifier.scopus-author-id	55539804000
rcaap.rights	openAccess	pt_PT
rcaap.type	article	pt_PT
relation.isAuthorOfPublication	1e85592a-e8e2-4aea-bd8e-1007c94388c0
relation.isAuthorOfPublication.latestForDiscovery	1e85592a-e8e2-4aea-bd8e-1007c94388c0