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O impacto da insuficiência renal crónica no adolescente em hemodiálise e na família
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Abstract(s)
A I.R.C é uma patologia que pode afetar pessoas de todas as idades. Na adolescência particularmente, uma patologia crónica como esta afeta bio-psico-socialmente o adolescente e a família.
A hemodiálise é um tratamento muito invasivo que provoca alguns desconfortos ao longo do tratamento e afeta também o seu dia-a-dia, pois o tratamento é de 4horas e pode ser 3 a 4 dias por semana o que provoca alterações no seu cotidiano.
O projeto tem como objetivo principal entender os sentimentos dos adolescentes com uma doença crónica e como vivenciam o seu dia-a-dia, tal como o impacto desta situação na família.
Para a realização deste trabalho optou-se por um estudo de caso com abordagem qualitativa do tipo descritivo.
A recolha de dados foi efetuada através de uma entrevista semi-dirigida, a um adolescente e família que realiza hemodialise quatro vezes por semana, no Hospital Santo António, Porto.
O impacto que a IRC e hemodiálise tem na vida do adolescente e família, foi analisada numa perspectiva biopsicossocial, tendo-se verificado que existe grande dificuldade na aceitação da situação, quer por parte do adolescente quer da família. Viver com uma doença crónica, neste caso com IRC, provoca alterações na vida da pessoa e família, quer na realização das atividades de vida, quer a nível social e psicológico. Apesar de cansados das versissitudes da vida, a família apresenta uma força de vontade enorme para ultrapassar o impacto das mesmas.
Apesar de se concluir que o adolescente apresenta dificuldade na aceitação do estado de doença, não é possível, no entanto, generalizar para outros casos, pois trata-se de um estudo de um caso único.
The CRF (Chronical Renal Failure) is a pathology that can affect people from any ages. In the Adolescence, in particular, a chronic pathology like this affects the teenager and the family bio-psychologically and socially. Hemodialysis is a very invasive treatment which causes some discomforts during procedure and also affects your day-to-day, because the treatment last 4 hours and can be 3 or 4 days per week, which causes changes in their daily lives. The project has as main objective understand the feelings of adolescents with a chronic disease and how do they experience their day-to-day, as well as the impact of this situation in the family. To this work has been chosen a study case with a descriptive qualitative approach. The Data collection was done through a semi-directed interview to an adolescent and family that makes hemodialysis four times a week at Porto’s Santo António Hospital. The impact that renal failure and hemodialysis have in the adolescent and family life’s was analyzed in a biopsychosocial perspective and it was found that there is a great difficulty in accepting the situation, either by the adolescent or the family. Living with a chronic disease, in this case CRF, causes changes in one’s and it’s family life, both socially and psychologically. Although, tired from life adversities, the family has a great willpower to overcome the impact of them. Despite of concluding that the young man has difficulty in accepting the disease state, it isn’t possible to generalize to other cases, because we dealing with a single case study.
The CRF (Chronical Renal Failure) is a pathology that can affect people from any ages. In the Adolescence, in particular, a chronic pathology like this affects the teenager and the family bio-psychologically and socially. Hemodialysis is a very invasive treatment which causes some discomforts during procedure and also affects your day-to-day, because the treatment last 4 hours and can be 3 or 4 days per week, which causes changes in their daily lives. The project has as main objective understand the feelings of adolescents with a chronic disease and how do they experience their day-to-day, as well as the impact of this situation in the family. To this work has been chosen a study case with a descriptive qualitative approach. The Data collection was done through a semi-directed interview to an adolescent and family that makes hemodialysis four times a week at Porto’s Santo António Hospital. The impact that renal failure and hemodialysis have in the adolescent and family life’s was analyzed in a biopsychosocial perspective and it was found that there is a great difficulty in accepting the situation, either by the adolescent or the family. Living with a chronic disease, in this case CRF, causes changes in one’s and it’s family life, both socially and psychologically. Although, tired from life adversities, the family has a great willpower to overcome the impact of them. Despite of concluding that the young man has difficulty in accepting the disease state, it isn’t possible to generalize to other cases, because we dealing with a single case study.
Description
Trabalho apresentado à Universidade Fernando Pessoa como parte dos requisitos para obtenção do grau de Licenciada em Enfermagem
Keywords
IRC Adolescente Hemodiálise Família Insuficiência renal crónica