Loading...
Publication
Qualidade de vida nos doentes com esclerose múltipla
| Name: | Description: | Size: | Format: | |
|---|---|---|---|---|
| PG_26270 | 1.23 MB | Adobe PDF |
Advisor(s)
Abstract(s)
A Esclerose Múltipla (EM) consiste numa doença crónica, incapacitante e de carater imprevisível, sendo que a progressão ao longo da doença origina problemas físicos, psíquicos e até sociais, que por sua vez, vão ter impacto na Qualidade de Vida (QV) dos doentes.
Deste modo, o presente estudo, Qualidade de Vida nos Doentes com Esclerose Múltipla, tem como principal objetivo conhecer a perceção da QV dos doentes portadores de EM, bem como adquirir conhecimentos enquanto investigadora e aprofundar conhecimento sobre a temática em causa.
A amostra da presente investigação foi constituída por 15 pessoas, e teve como critério de inclusão, ser portador de EM e apresentar capacidade de compreensão para o preenchimento do inquérito. O processo de selecção passou pelo método de investigação em rede, ou seja, a partir de um caso conhecido e familiar foi possível ter acesso aos restantes participantes.
Para a realização da investigação foi utilizado um instrumento de colheita de dados, intitulado: Questionário Qualidade de Vida, constituído por Parte I - Caraterização da amostra e Parte II – MOS SF-36V2 (Medical Outcome Study 36-Item Short Form Health-surve) com os autores da versão original Jonh Ware Jr, Cathy Sherbourne e traduzida a português por Pedro Lopes Ferreira (2000).
Os resultados mostram que a forma Esclerose Múltipla Recidivante-Remitente (por surtos) é a mais frequente na amostra estudada e aquela em que os seus portadores apresentam melhor qualidade de vida
Dos domínios que constituem o questionário SF-36V2, são os domínios Dor, Vitalidade e Aspetos Sociais que apresentam valores mais baixos, relacionados com menor qualidade de vida.
Multiple sclerosis (MS) is a chronic, debilitating and unpredictable disease character, and the progression through the disease originates physical, psychological and even social problems, which in turn will have impact on quality of life (QL) of patients. Thus, the present study, Quality of Life in Patients with Multiple Sclerosis, aims to know the perception of QL of patients with MS, as well as gaining knowledge while investigating and deepen knowledge on the subject in question. The sample of this research consisted of 15 people, and had as inclusion criteria, being MS patient and understanding present capacity for completing the survey. The selection procedure passed the network investigation method, or from a known and familiar case was possible to have access to the other participants. To carry out the research we used a data collection instrument entitled: Quality of Life Questionnaire, comprising Part I - Characterization of the sample and Part II - MOS SF-36V2 (Medical Outcomes Study 36-Item Short Form Health-surve) to the authors of the original version John Ware Jr, Cathy Sherbourne and translated to Portuguese by Pedro Lopes Ferreira (2000). The results show that the shape of Relapsing-Remitting Multiple Sclerosis (for attacks) is the most frequent in the sample and is the one in which their carriers have better quality of life. The fields that make up the SF-36v2 are the Bodily Pain, Vitality and Social Aspects that have lower values associated with poor quality of life.
Multiple sclerosis (MS) is a chronic, debilitating and unpredictable disease character, and the progression through the disease originates physical, psychological and even social problems, which in turn will have impact on quality of life (QL) of patients. Thus, the present study, Quality of Life in Patients with Multiple Sclerosis, aims to know the perception of QL of patients with MS, as well as gaining knowledge while investigating and deepen knowledge on the subject in question. The sample of this research consisted of 15 people, and had as inclusion criteria, being MS patient and understanding present capacity for completing the survey. The selection procedure passed the network investigation method, or from a known and familiar case was possible to have access to the other participants. To carry out the research we used a data collection instrument entitled: Quality of Life Questionnaire, comprising Part I - Characterization of the sample and Part II - MOS SF-36V2 (Medical Outcomes Study 36-Item Short Form Health-surve) to the authors of the original version John Ware Jr, Cathy Sherbourne and translated to Portuguese by Pedro Lopes Ferreira (2000). The results show that the shape of Relapsing-Remitting Multiple Sclerosis (for attacks) is the most frequent in the sample and is the one in which their carriers have better quality of life. The fields that make up the SF-36v2 are the Bodily Pain, Vitality and Social Aspects that have lower values associated with poor quality of life.
Description
Projeto de Graduação apresentado à Universidade Fernando Pessoa como parte dos requisitos para obtenção do grau de licenciada em Enfermagem