| Name: | Description: | Size: | Format: | |
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| 2022126986 | 476.7 KB | Adobe PDF |
Authors
Advisor(s)
Abstract(s)
Trata-se de um estudo qualitativo, indutivo, baseado em narrativas de grupos focais (Krueger & Casey, 2000), que tem como objetivo desenhar uma rede de apoio aos pós-cuidadores informais, identificando os pontos de contacto importantes através das perceções dos membros da equipa de cuidados paliativos e da equipa de apoio domiciliário, dos médicos de clínica geral, dos cuidadores informais e dos pós-cuidadores informais, bem como de membros da sociedade civil. Baseou-se numa abordagem de Medicina Narrativa (Charon, 2006) e Análise Temática (Braun & Clarke, 2006), articulando termos e conceitos narrativos com a dimensão ética da experiência vivida. Foram realizados três grupos focais com 15 participantes. A análise dos dados qualitativos destacou CommunityForCare (forças vivas da comunidade) como um tema abrangente que deve orientar a construção de uma rede de apoio para os pós-cuidadores informais. Além disso, surgiram três subtemas intimamente relacionados: (1) Eixo da Compaixão, (2) Eixo da Ação Coordenada, (3) Eixo da Literacia dos Cuidados. O facto de centrar a resposta na comunidade permite uma maior capacitação para a prestação de cuidados, valorizando os intervenientes, ao mesmo tempo que retira o ónus ao sistema institucional, que pode assim assumir a responsabilidade de apoiar iniciativas comunitárias, como a CommunityForCare.
This is a qualitative, inductive study, based on focus group narratives (Krueger & Casey, 2000), and aims to design a support network for informal post-caregivers, identifying important points of contact through the perceptions of members of the palliative care team and the home support team, general practitioners, informal carers and informal post-caregivers, as well as members of civil society. It was based on a Narrative Medicine approach (Charon, 2006) and Thematic Analysis (Braun & Clarke, 2006), articulating narrative terms and concepts with the ethical dimension of lived experience. Three focus groups were held with 15 participants. The analysis of the qualitative data highlighted CommunityForCare as an overarching theme that should guide the construction of a support network for informal post-caregivers. In addition, three closely related sub-themes emerged: (1) Compassion Axis, (2) Coordinated Action Axis, (3) Care Literacy Axis. The fact that the response is centred on the community allows for greater empowerment in the provision of care, valuing those involved, while at the same time removing the burden from the institutional system, which can then take on the responsibility of supporting community initiatives such as CommunityForCare.
This is a qualitative, inductive study, based on focus group narratives (Krueger & Casey, 2000), and aims to design a support network for informal post-caregivers, identifying important points of contact through the perceptions of members of the palliative care team and the home support team, general practitioners, informal carers and informal post-caregivers, as well as members of civil society. It was based on a Narrative Medicine approach (Charon, 2006) and Thematic Analysis (Braun & Clarke, 2006), articulating narrative terms and concepts with the ethical dimension of lived experience. Three focus groups were held with 15 participants. The analysis of the qualitative data highlighted CommunityForCare as an overarching theme that should guide the construction of a support network for informal post-caregivers. In addition, three closely related sub-themes emerged: (1) Compassion Axis, (2) Coordinated Action Axis, (3) Care Literacy Axis. The fact that the response is centred on the community allows for greater empowerment in the provision of care, valuing those involved, while at the same time removing the burden from the institutional system, which can then take on the responsibility of supporting community initiatives such as CommunityForCare.
Description
Relatório apresentado à Universidade Fernando Pessoa como parte dos requisitos para o cumprimento do programa de Pós-Doutoramento em Medicina Narrativa
Keywords
Cuidador informal Rede Compaixão Literacia Comunidade Informal caregiver Network Compassion Literacy Community